boys at JL 2013

Our Boys

We all have experiences that are unique. As a counselor I have heard over and over people say to me that you can’t possible understand what I am going through. And it’s true, I can’t relate to what they are experiencing, but that doesn’t mean that I can’t be supportive, sympathetic and maybe even provide some helpful insight. For me, raising special needs twin boys is one of those experiences. I have often felt like no one could possibly understand the day to day stress that comes with having two special needs kids. But I realize that there are many that have special needs family members and even those who have multiple family members with special needs. And I certainly realize that there are those who are dealing with much more severe disabilities than we are.

I would like to introduce you to Russell and Jarod. They have been diagnosed as moderately mentally disabled. They are happy outgoing kids who have endeared themselves to so many people. Much of my motivation for creating this site is to allow those people and others an inside look at what our lives are like. My other goal for this site is to allow other parents to share some of their experiences. My experience with special needs kids has been a roller coaster of emotions. I have experienced anxiety, pride, frustration, gratitude, worry, love, fear, hope, anger and absolute joy. And all of these can be before breakfast on a given morning. I would love to hear about some of the emotions that others are feeling.

Our Posts

  • The Challenge of Transitions

The Challenge of Transitions

  • July 29th, 2014

Have you ever been doing something when you were caught up in the moment and that task or activity had your complete attention, then someone interrupted you and asked you to drop everything and do something else? You are in the middle of something and would like to finish. You know that it is going to take a while to get refocused. Think about how much that irritates you, and then multiply that by 10. That is what it is like when we try to get the boys to […]

Guest Posts

  • Enjoy the Ride – Turning Chores into Smiles

Enjoy the Ride – Turning Chores into Smiles

 

               Life changes for the whole family the minute a special needs child arrives, but change is not necessarily bad — just different.  Kaitlin, our 15 year old with Down’s Syndrome, doesn’t always get to participate in some of the typical teenage activities.  (Side note:  Although she does get to participate in “mainstream” activities to an extent through the Down Syndrome group, Challenger softball league, Girl Scouts, etc., and loves every minute of it, it’s still not quite the same.)  These awesome examples aside, one of her favorite things […]